General Information Regarding Sickle Cell Charities

By Ines Flores


Charity refers to a voluntary practice of giving that is considered a humanitarian act. There are charities that support a number of causes, including health research and education. Sickle-cell disease, also known as sickle-cell anemia, is a hereditary blood disorder that affects people all around the globe. Many sickle cell charities are in operation worldwide and strive to find a cure for this condition, as well as provide sufferers and their families with care and educational services.

Sickle cell can be extremely painful and difficult to live with. It affects people of all ages and is typically diagnosed when an individual is young. SCD is marked by an abnormality within the oxygen-carrying hemoglobin molecule of the red blood cells. This causes cells to take on a different appearance, one that is rigid and sickle-shaped or otherwise abnormal.

This disease is linked to a number of chronic and acute health conditions, including infections, stroke, sickle-cell crises, and a increased risk of fatality. People who have this disease have inherited two abnormal copies of this blood gene, one from each parent. There are subtypes that exist and vary based on the mutation of the gene. Some people might have a single copy that is abnormal and not experience traditional symptoms. Said individuals have what is called sickle-cell trait.

Charities of this kind often strive to support and address the many issues related to this condition. They promote and help in funding research on ways to manage, cure and reduce the occurrence of this. The donations and money raised by these organizations goes to supporting sufferers, as well as their families. This may include developing educational programs that guarantee patients are aware of how to manage this condition and what it involves. There are a lot of positives that come from the work of these charitable groups.

It is essential that people do adequate research on the charities they plan to get involved with. Most are quality and trustworthy, but there are scammers too. People should know where their donations are going and how they will be used. Many resources are available to help determine the validity of these charities. Different kinds of donations, not just monetary, may be given to help benefit the organization.

Worldwide, people are affected by this. Those unable to manage the condition are expected to face consequences, including shorter life expectancy. Blood tests, which are usually done on newborns while in the hospital, are used to identify this disease. It can also be detected before a baby is born. Kids that have SCD are more likely to develop serious infections and other health conditions.

No single treatment is ideal for all SCD patients. There are several options available for managing this condition. Most of the charities in support of this put money toward study and research that can provide more options for treatment, prevention and cures.

There are not many long-term or permanent solutions for healing this, except for stem cell and bone marrow transplants. Both of these options are invasive and come with numerous risks. Many patients are waiting to have bone marrow transplants, but there is a high demand and not as much of a supple. Close matches are needed for marrow transplants. Typically these options are only used for severe instances of SCD.




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